We entered the exam room, had to undress Mona completely, as soon as we undressed her she started crying (who wouldn't, right!!). Then we had to make her lay down on the table, while the doctor cleaned her and then inserted a very thin tube in her bladder.
This procedure is in no way harmful, but it is an intrusion!! And believe me when i say that, because Mona started crying but with a very angry look in her eyes. And all the time they were doing this to her, she was looking at me crying, with this look that meant, "how dare you let them do this to me!!!" I was so sad at that point I just wanted to cry! I don't want to ever see that look in her eyes ever again!! It was so painful to see!!
They put the tube which is called a catheter in her to fill her bladder with a contrast liquid to have the x-rays done. Once the liquid is inside, A big hug large camera came above her (from her stomach to her legs.. it was really huge) and while this camera was slowing coming down on top of her, Mona started to cry again as she was frightened by it... So they took lots of x-rays pictures with this camera. We had to keep her still all the time so that the x-rays are done properly and don't become too blurry for them to analyse. This was a very hard job to do. We were 4 people trying to keep her still on the table and poor little thing was resisting and twisting her body with all the force she had!! She was still crying, louder and louder!! Everything we did to distract and comfort her didn't work!!
Then we had to wait for Mona to do a pee (pipi) so that she clears the liquid out for them to take pictures of that process to see if she had Urinary Reflux (meaning that her pee goes back up her ureters tubes into the kidneys, which could cause severe infection and damage).
We waited and waited for Mona to do a pee... It was the longest wait i had to wait... because she was really crying her lungs out at this stage and all she wanted was to get out of the table and get into my arms. She keep screaming "mummy mummy" and crying and looking at me with those eyes... it was really hard for me and hubby, because we couldn't take her in our arms, we had to keep her still on the table. I tried singing her favorite prayers with her, talking to her, nothing worked.. she still was crying!! After 30mins or so, she started to calm down and she still hadn't done a pee at that time. So i gently talk to her and sang a few Baha'i Songs while i stroke her hair and forehead and played with her ears... she then started to relax which then made her had a pee!!
So while she was peeing, they took x-ray pics again and then some more x-rays with the bladder empty and then they cleaned her up and made sure there was no more contrast liquid in her. And then the exam was finished.
So I quickly dressed her back up and when i went to give her a big hug, she refused and turned to daddy instead. (oh my heart broke!!!). But daddy did a great job at comforting her and she was totally calm and back to her usual self in no time. When she was calmed i extended my arms to her and then she came to me!! (i felt so happy!!). Then we had to wait for the results of the test, and as soon as we put her back down she ran towards the door and went to play in the waiting room.
After a few minutes, the doctor came to talk to us.
She said that Mona had Urinary Reflux!!!! (i felt my heart sank when i heard those words from her mouth!!)
She then proceeded to say that it's not a severe one but it's a very rare condition as only 1 in 4 children get it. What she explained to us was that one of Mona's Ureters (see image below) is not properly attached to her urethra (bladder), which means that each time she pees, her pee goes back up the ureters to the kidney. Now this could be very dangerous if she had another bladder infection, as the infection would then spread to the kidney, which could then lead to an infection or scaring.
The doctor then said that we need to do our best to prevent any urinary track infection (bladder infection) by giving her antibiotics daily for a couple of years till she is around 5/6 years old. Hopefully by then the ureter will have corrected itself, otherwise then we would have to proceed to an operation to fix it. She then called out doctor to pass on this info and we asked us to go see our doctor to get prescription for the antibiotics.
So we did... we went to see our doctor and chatted with her about Mona's condition and our concerns etc... I was concerned about giving antibiotics to Mona for that long, but as the doctor said, we must evaluate the positive and negatives results of giving antibiotics to her. The positive would be to prevent and treat any bladder infection that could cause her damage to her kidneys and the negative would be to wait till she get an infection to treat it by antibiotics and that might be too late if the infection goes to the kidneys. So we are going to give her the antibiotics once a day until further notice. We will also be doing regular ultra-sounds to check and see if there is no infection to the bladder. The doctor was actually quite shocked that Mona's results came back positive, she said it was the first time in all the years of working which children and referring them to have the test done that one of the test results came back positive !!! She also referred us to a Kidney Specialist for kids (a very good and experienced pediatrician from the same hospital we went to this morning) to follow up on Mona.
Then we went back home and Mona had a big big nap.
I am happy to say that she is back to her usual self, very happy and joyful and so full of energy!!
Thank you all for your support and prayers for my darling little girl and our family.
14 comments:
Oh, Sabby. How awful for you and Mona and your husband. I am sending you a big hug.
Love from your Canadian auntie
Poor baby. My prayers are with you and her.
Lynn
Winconsin, USA
How blessed we are to live in this day! The tests can determine this and medications can be given to prevent damage.
God is, indeed, glorious!
Love,
Lenore
ti dire toi ki li pou korek et ki li pena nenyer
So glad you have an answer!
Pat
Yes, Lenore - it is wonderful. The other day I was talking about my gramma who arrived in this country in a covered wagon all the way from Nebraska. She lived long enough to sit in her living room and see Neil Armstrong land on the moon on tv. Wow.
Then I said think of what she saw in her lifetime. My friend said, think of what we have seen in our lifetimes. And when I stopped and thought, we have had miraculous things too. The advances in medicine alone have been astonishing.
Several of us took a course on Spirituality and Healing quite a while back. It was extremely intensive and I am not sure if anyone finished it or not. What was fascinating to me was the new look at how spiritual beliefs affect healing - so along with MRIs and catscans and improved surgery, we have hand in hand a new wave of combining prayer, spiritual beliefs etc. with modern medicine and growing evidence that they work hand in hand.
My kidney disease in hereditary and my youngest child got it. I didn't know I had it myself until after she was born. I am sure in my heart that by the time she reaches my age she will have many more avenues open to her - each age has wondrous new discoveries.
Love to little Mona and you Sabby,
trish
Allah'u'abha!!
Thank God it is a curable sickness and by the Grace and powerful protection of our Heavenly Father, The Glory of God, BAHA'U'LLAH, she will be fine.
We must be patient and confident, we must be thankful for it has been diagnosed and detected at the right time, we have the remedy and it is fine.
Make an online search and see if other children have same and what they take as remedy and what they take for the effects of antibiotics. I think there are many solutions to that, fruits may be very helpful for her... have to see.
I was very sad when reading this online, but finally happy that it has been detected now, and trust in my Lord.
So you must be strong and happy!
No sadness for you dear, I am sure 100percent that she is being protected, I have for some days put her name on a prayer list in the West Temple in Willmet, they are doing prayers for her (15 days), then i will give them a new list and Mona will be there for as long as needed!
So take care, GOD BE WITH YOU!
LOVE DAD
Sabby,
Prayers for a swift recovery. It is so good to know that there
is a tool to discover the problem for sure. It is sad that a
tiny little girl should suffer so.
Love and Hugs for all.
Special Aunty kisses for Mona, to be given by Mom.
--
Lily Fox
Poor baby, as always, even though I haven't said so, my prayers are with you all.
Janet.
I'm so sorry, Sabby, that you and Mona had to go through all of that. May I suggest that you spend some time several times in the next year or so holding her on your lap and explaining what happened and why? Otherwise, I fear she will react to the intrusion in a way similar to sexual molestation. She needs to know why you subjected her to that. She may not understand it all -- I'm sure she won't -- but at least she will know that you meant no harm and how badly you felt that you had to do it. Perhaps each morning, when you give her the antibiotic, you can say, "This is so that we don't have to go through that again." Or words to that effect.
Love,
Irene
Dear Sabby,
If you don't mind if I ask? What is the doctor's prognosis now? Will she just be on 'watch and consult'? Will she have to take antibiotics and more tests etc.?
I looked at only one site that speaks about Urinary Reflux and UI infections regarding children and got 'some' idea of what you and she are going through:
http://familydoctor.org/online/famdocen/home/children/parents/toilet/370.html
Nancy
(In the foothills of the Sierra Nevada Mountain Range--Auburn, California)
Dearest, may I suggest that you see a qualified chiropractor or someone who knows kenisiology. It is a very simple matter to cure this reflux using the Boron method of kenisiology. I took a Baha'i baby to see my kinesiologist when he was five months old with reflux problems. The normal medical docs said he needed an operation. He was fixed with that one session and never had it again. The valve needs adjusting.
http://www.kinesiology.net/
Baha'i Arohanui
Kathy Gilbert
New Zealand
I pray that she outgrows this. One of my daughter's friends had this and did outgrow it. Poor little girl could never take a bubble bath because the soap irritated her.
Thank goodness for the fantastic medical procedures we have to find out what was wrong. I will continue to pray for her health and your family.
Love, Cheryl
Dearest Beautiful Sabby!!!
I would like to tell you my story of infection. In 2000 I went to visit my sister in Hawaii. Some critter bit the back of my right calf and it started to itch. It does not matter what critter bit me. The bite made an opening in my skin. Then, foolishly, rather than bend down and scratch the itch with my hand, I used the bottom of my slipper I'd worn outdoors. I started to sleep all the time! I'd sleep for hours, wake up for 20-30 minutes, eat something or drink and go back to sleep.
After all that sleeping (I was FILLED with infections and didn't know it then) my right leg started to hurt. I thought if I "walked it out" it would get better, but it got worse. I called Kaiser Hosp (my HMO) from Hawaii to ask for some pain pills as I was due to fly home in the next couple of days. The advice nurse said for me to go to the nearest hospital that day. I did and they admitted me. By now my leg was red, swollen and hurting.
They started me on MASSIVE doses of antibiotics, but I still was not getting better. They even
discussed amputating my leg but didn't because the bone was not infected.
My mother told my sister to take in a bottle of Shaklee's Vitamin E and I was to take one E tablet three times a day. It was only then that I began to get better. I finally healed enough to go home and when I got home my own doctor put me back in the hospital for 4 days.
This story has more to go. About once or twice a year the leg began to get red and hot and infected. The first time or two this happened, my doctor put me on antibiotics and the situation reversed itself.
After a while I decided that I would try to treat the re-occurrence of infection with Vitamin E...a LOT...and it worked.
I do not want you to use Mona as a guinea pig, but then again, I don't think it's a good idea to
be taking so many antibiotics. Because people are using a lot of antibiotics, strains of diseases
have become resistant to antibiotics. This is scary!!!
What I DO want you to do is to educate yourself and Naysan on Vitamin E. You can google it and
find articles on the internet. Find a Naturopathic Doctor, or a Homeopathic Doctor, and ask them about Vitamin E. Once you have some hard facts you can decide what to do.
I only want the best for you and Naysan and that precious daughter of yours.
Much love and a kiss to the little one,
"Auntie" Gayle
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